Adverse events should be reported. Reporting forms and information can be found at www.mhra.gov.uk/yellowcard or search for MHRA Yellow Card in the Google Play or Apple App Store. Adverse events should also be reported to Roche Products Ltd. Please contact Roche Drug Safety Centre by emailing email@example.com or calling +44 (0)1707 367554.
Perspectives on haemophilia A patient care and management
This Experts Uncut series provides insight into the management and care of haemophilia A patients, from the perspective of UK haemophilia experts. The series was recorded in live webinar format, allowing for audience participation through submissions of questions to panelists.
Select from the videos below to hear expert panelists respond to questions and exchange insights regarding how haemophilia A care is delivered and managed in the UK.
The changing landscape of haemophilia A care in the UK
Cathy Harrison, Dr Kate Khair, Paul McLaughlin and Debra Pollard discuss the key highlights from the WFH Virtual Summit 2020 and implications on the way haemophilia care is delivered and managed in the UK. Key themes covered during this Experts Uncut virtual session are; the evolving role of nursing care, patients and caregivers quality of life, novel therapies, musculoskeletal considerations in people living with haemophilia and women with bleeding disorders.
Video recorded 7 July 2020. Data correct at time of presentation.
COVID-19 pandemic: ramifications for haemophilia A management
Dr Gerry Dolan, Prof Charles Hay, Dr Sarah Mangles and Dr Elizabeth Chalmers share their UK-wide experiences of haemophilia A patient management and care during the COVID-19 pandemic. They voice their concerns regarding the potential mid to long term ramifications the pandemic may have for their clinical practice and for their patients.
Video recorded 10 June 2020. Data correct at time of presentation.
Cathy Harrison, Advanced Nurse Practitioner, Sheffield Adult Haemophilia and Thrombosis Centre
Cathy Harrison has been a trustee of Haemnet since 2014, has served on the Haemophilia Nurses Association Committee since 2012, taking on the role of chair this year, and is currently undertaking her master’s degree. She co-created and taught on the Contemporary Care Course for People with Bleeding Disorders and is on the United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) peer review and comorbidities working parties.
Dr Kate Khair, Director of Research
Since becoming a state registered nurse, Kate has acquired many professional qualifications, including state registration in paediatric nursing, a master’s degree in anthropology, a City and Guilds master’s degree in higher levels of practice, several modules in advanced nursing and a PhD in health and social care. She worked in the haemophilia treatment centre at Great Ormond Street Hospital for Children from 1991 until 2018. She is well known for championing the nurse’s role in the haemophilia multi-disciplinary care team.
Paul McLaughlin MSc, MMACP
Paul McLaughlin works as a clinical specialist physiotherapist in haemophilia at the Katharine Dormandy Haemophilia and Thrombosis Centre at the Royal Free Hospital in London. In 2000 he completed his undergraduate degree at the University of Ulster in Belfast, N Ireland, and his master’s degree in advanced physiotherapy (neuromusculoskeletal rehabilitation) at King’s College London in 2009. He is currently undertaking a National Institute for Health Research (NIHR) funded PhD investigating the use of rehabilitation in the management of pain associated with haemophilic arthropathy.
He is a member of the Musculoskeletal Association of Chartered Physiotherapists (MACP), a specialist group of expert physiotherapists providing excellence in examination, treatment and management of people with neuromusculoskeletal problems. His clinical interests are pain management in haemophilia, the use of exercise as a rehabilitation tool, enhancing patient knowledge and understanding of their musculoskeletal disorder, and patient relevant outcomes assessment.
He is a past chair of the HCPA – a UK group of specialist physiotherapists working in haemophilia. He is a founding member and current vice-chair of the European Association for Haemophilia and Allied Disorders (EAHAD) physiotherapy committee, and a member of the musculoskeletal working party of the UKHCDO.
Debra Pollard, Lead Nurse Specialist, Royal Free London NHS Foundation Trust
Debra Pollard is lead nurse specialist at the Katharine Dormandy Haemophilia and Thrombosis Centre, at the Royal Free Hospital. Since joining the Haemophilia Centre in 1991, Debra has been involved with the introduction of innovations in haemophilia treatment and care, from the introduction of prophylaxis and recombinant clotting factors, through to gene therapy and disruptive therapies. Debra led the Community Nursing Service and Home Treatment Training Programme for many years, before taking on her current advanced nursing practice and leadership role.
Debra has a particular interest in the quality of life of those living with bleeding disorders. She believes there is a growing need for qualitative research, to ensure a better understanding of the real life issues for the bleeding disorders community. Biography correct at time of filming.
Dr Gerry Dolan, Centre Director, Guy’s and St Thomas’ NHS Foundation Trust
Dr Dolan qualified from Glasgow University Medical School and held training posts in internal medicine and haematology in Glasgow, Edinburgh and Sheffield before being appointed consultant haematologist at Nottingham University Hospital. He was head of the haemostasis and thrombosis service in Nottingham until 2015, before his current role as centre director at St Thomas’ Hospital, London.
He has been on the executive committee of the UKHCDO since 1997 and was the chairman until October 2015. He was also previously president of the British Society of Haemostasis and Thrombosis (BSHT) and chair of the European Haemophilia Therapy Strategy Board (EHTSB). He is the co-chair of the ADVANCE group (a collaboration of European physicians, interested in the care of older adults with haemophilia).
His interests include clinical outcomes in haemophilia, management of older adults with haemophilia and molecular aspects of bleeding disorders.
Prof Charles Hay, Clinical Professor of Haemostasis and Thrombosis, Consultant Haematologist
Prof Charles Hay is clinical professor of haemostasis and thrombosis at The University of Manchester and director of the Manchester Haemophilia Comprehensive Care Centre based in Manchester Royal Infirmary, UK. He has directed the UK National Haemophilia Database since 2002 and is a regular advisor to the Department of Health, NHS England and former chair of the UKHCDO.
After training in Sheffield and London and a period as a senior lecturer in haematology at the Royal Liverpool University Hospital, where he specialized in thrombosis and haemostasis, Prof Hay moved to Manchester Royal Infirmary in 1994. He is active in research into the management and complications of treatment for bleeding disorders, and was the principal investigator of the International Randomized Immune Tolerance Study, amongst many other studies.
He serves on the editorial boards of, and as a reviewer for, several journals. He has authored more than 200 papers, reviews and book chapters in the field of haemostasis and thrombosis.
Dr Sarah Mangles, Consultant Haematologist
Dr Sarah Mangles qualified from Newcastle University in 2000 and completed her clinical haematology training in London at the Royal Free, Hammersmith and St Mary’s Hospitals.
She completed her MD(Res) at Imperial College, London studying the breakdown of blood clots on the cell surface in patients with chronic thromboembolic pulmonary hypertension.
Sarah started as a consultant in Hampshire Hospitals NHS Foundation Trust in May 2013. She is interested in all aspects of haemophilia and thrombosis, but currently is very involved in all aspects of haemophilia care including all the clinical trials run by the network. She participates in combined clinics with orthopaedics, hepatology and HIV. She also runs a combined clinic with the obstetric team for patients with bleeding or thrombotic disorders in pregnancy.
Dr Elizabeth Chalmers, Centre Director, Royal Hospital for Children, Glasgow
Dr Elizabeth Chalmers is a consultant paediatric haematologist at the Royal Hospital for Children in Glasgow and is the director for the Glasgow Comprehensive Care Centre (Paediatrics). Dr Chalmers has clinical and research interests in paediatric haemostasis and has contributed to both national and international guidelines.
BSHT, British Society of Haemostasis and Thrombosis; EAHAD, European Association for Haemophilia and Allied Disorders; ECTH, European Congress on Thrombosis and Haemostasis; EHTSB, European Haemophilia Therapy Strategy Board; FVIII, Factor VIII; FIX, Factor IX; ISTH, International Society on Thrombosis and Haemostasis; MACP, Musculoskeletal Association of Chartered Physiotherapists; UKHCDO, United Kingdom Haemophilia Centre Doctors’ Organisation.
- HEMLIBRA Summary of Product Characteristics.
Date of preparation: September 2021